Our support group has a member from Australia with sitting disability. She wrote this on an online magazine:
“And then one day, I took my invisibility cloak off. I bought, for a tidy sum, from the magical land of Norway, a wheel stretcher. It is like a wheelchair and an ambulance stretcher had a child with good suspension and a soft flat mattress. Suddenly, I have the uber-visible disability.” She also wrote: “Finally, through a web forum I find the answer. The diagnosis 20 doctors over 10 years couldn’t find. Lyme disease. It is confirmed by blood tests sent overseas, and by doctors who specialise in treating it….”
Read her post on our message board!
There are also several on-line information and discussion groups, including CO-CURE: the Chronic Fatigue Syndrome and Fibromyalgia Information Exchange (http://www.co-cure.org/readfm.htm); FIBROM-L: Fibromyalgia Discussion Group (http://www.fmscommunity.org/); and FMS-CFS Friends International Online Support Group (http://www.fms-cfsfriends.com/).
Six Norwegian media students wanted to tell about sitting disability! They volunteered to do this project on their spare time after school. They made a 30 seconds video based on several days of recording and one year of editing. Most of the work was done during school holidays. Watch the video!
Now it is up to us to continue the information campaign about sitting disability!
The Norwegian version of the movie has been running on Norwegian national TV during all holidays in 2013.
We believe this has been a very informative project that may help thousands of people living with this unrecognized disability. Our online support group offers people further information and support. We also have an active group for people with sitting disability on Facebook with 160 members.